We propose that traditional methods to protect patient privacy and control won’t work in the new digitized health ecosystem where data is collected, transmitted, aggregated across thousands of nodes instantaneously. We examine the merits and limitations of proposed alternatives like the fiduciary framework that imposes accountability on those that use the data; privacy by design principles that rely on technological safeguards against abuse; or regulations.
PublicationsPolicy Design and Analysis
Rebooting consent in the digital age: a governance framework for health data exchange
July 22, 2021
By Nivedita Saksena, Rahul Matthan, Anant Bhan, Satchit Balsari